Hello all! Did you know it is less than two weeks until Christmas? I am so excited and trying to stay in the Christmas spirit in the midst of all the doctor drama! I just wanted to update on what happened in Charlotte.
Dr. Antonacci at CMC is wonderful! With that being said, I am sorry to report that Conner will not be seeing him for treatment. They do not have the resources to follow Conner as he starts steroids &/or proplanalol. Plus Conner needs to regularly see an opthamologist, plastic surgeons, hematologists. A whole team of people and Dr. Antonacci is only one person...LOL. He recommended that Conner go as soon as possible to see Dr. Milton Waner at the Vascular Birthmark Institute in NYC. However at this time Conner's insurance will not cover that visit. As a second option he wanted us to go to Duke University Medical Center. That is where we will be heading tomorrow. We have an idea of the course of treatment. Possible steroids, possible laser therapy, possible topical ointment. Hopefully no invasive surgery at this time. Dr. Antonacci also threw out there that if the steroid treatment did not work it was a possiblity that Conner would have to undergo chemotherapy. Not because the tumor is cancerous but because it would help to kill the blood cells. I pray that this does not happen, but I know that God knows exactly what Conner needs.
I cannot say how much everyones love and support has meant to me. It is a daily encouragment to just hear the words "we're praying for you!" God has richly blessed our family with a network of other belivers that have touched our hearts in so many ways! : ) More updates after the Duke appointment tomorrow and maybe I can get an updated picture on here. Conner is growing to be such a little chunk. You can't help but just want to cuddle and squeeze him! : )
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