Thursday, December 10, 2009

Changes, Changes

I am in a much better frame of mind today.  So maybe I can get through all the information that we have recieved this week.  Before I ever went to preop I was in contact with the Vascular Birthmark Foundation.  These people deal with hemangiomas and other vascular birthmarks every day.  I wanted to know the standard course of treatment for what Conner has.  One thing that was very important when it comes to Conner's treatment is that the laser used must have a cooling agent on it.  This will help minimize his scarring.  With that being said, Mom and I went to the preop appointment armed with lots of questions.  The doctor that came in was NOT the original doctor that we had seen or the doctor that would be preforming the surgery.  Come to find out this was a urologist that just happened to be "helping out" in the plastics department....!?!? Needless to say we were confused, especially when he could not answer any of our questions, specifically the ones about the laser.  He decided it would be best to go ahead and ask the regular doctor to come speak with us (you think?).  She rushed in and was apparently not impressed with being taken away from whatever else she was doing.  When I asked her about the cooling agent on the laser, she told me that there was not one.  But did not elaborate.  The visit was rushed and there were several other things that she said that were contradictions to our previous visit.  She told us that she wanted to do just this one treatment and then wait until Conner stopped growing and then do a "cosmetic clean-up".  We were very disappointed in the quality of information we were given.  I am a sucker for internet research and the things I had learned about hemangioma treatment compared to what this doctor was planning on doing to Conner just did not add up.  So for now we are "postponing"  the surgery.  We will be seeing a new doctor in Charlotte tomorrow at 1 pm.  When I called their office yesterday for a second opinion they immediately wanted to work us in and cautioned us not to go through with the surgery on Friday until we had recieved a second opinion.  I am feeling very confident that God is leading our steps in the right direction.  I am so thankful for all of the prayers and words of support.  The Lord knows how much our family needs words of encouragment right now and always sends the right person with the right words at the right time.  Amazing how that works huh? I'll keep you all updated!!!

2 comments:

  1. well said, i think we all agree a second opinion is a wise decision!! love ya!!

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  2. Hey girl, sounds like prayers are already starting to be answered!! I really feel things are going to turn out great! It may just take a little time and alot more prayers, but its going to be ok! theres just too many of Conner's family and friends praying daily and even hourly for it not to, (all in God's will.) love you all , give hugs to the girls and to Conner, from Uncle Ahhh Bull !!! -----See ya soon

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